Some interesting analysis from both Pacific Northwest National Laboratory & University of Medicine & Dentistry of New Jersey has found unique protein types in the spinal fluid of those with Chronic Fatigue Syndrome(CFS) & Neurological Post Treatment Lyme Disease(nPTLS). Those with CFS were found to have 738 proteins that were unique from a healthy individual or someone with nPTLS. Those with nPTLS were found to have 692 unique proteins that were not found in a healthy person or someone with CFS. What’s interesting as well is that there were also 305 unique proteins that were shared by those with CFS or nPTLS, but not with someone who was healthy.
While the test group was relatively small(79 people), it does shed more light on both of these hard to diagnose diseases. Lyme Disease is somewhat well known, but notoriously hard to diagnose & treat. Meanwhile Chronic Fatigue Syndrome, until recently, has usually been labeled as a “psychosomatic illness”, as in it being “all in your head”. These proteins do seem to back up the notion that there are physical differences between a healthy person and one who has been dealing with Chronic Fatigue Syndrome or Lyme Disease. Hopefully it will open doors to better testing & open the minds of some doctors.
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I work with people with CFS / ME and it’s sad to see that modern day science hasn’t caught up with working with CFS/ME. This can cause problems for people who are diagnosed as people’s attitudes relating to CFS are still outdated.